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The Great Need for a Cardiomyopathy Registry

So, what is a patient registry exactly?

To put it simply, it’s a database of medical information on a particular disease or condition. For instance, a registry might track a patients’ age, sex, symptoms, devices and medications. For years medical registries have been used to track how patients do on specific medications or with a medical device. But they can be used for so much more. By tracking lab results, clinical outcomes, genetics and family history, doctors can utilize a truly complete picture of their patient. And if we track each patient with a certain disease or condition this way, researchers can begin to see similarities and differences that can lead to new standards of…

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Last Updated : Friday, August 2, 2019