Cardiomyopathy

Living with dilated cardiomyopathy

Finding out he had dilated cardiomyopathy prompted Simon Morgan to live life to the full. Doireann Maddock hears his story.

Paul's DCM Story

Because my heart was physically so large, it took a few nano-seconds longer for the signal for my heart beat to travel from one side to the other. Consequently, one side was slightly out of synchronisation with the other. I was advised to have a 3-wire pacemaker fitted.

Sudden Cardiac Death in Young Athletes - Is It Stoppable?

The most common cause of SCA in these young athletes is Hypertrophic Cardiomyopathy (HCM). HCM is an excessive thickening of the heart muscle that can lead to an irregular lethal heart rhythm called ventricular fibrillation.

Living with dilated cardiomyopathy

Richard Mindham has been living with the diagnosed condition for nine years and shares his experiences as a patient.

The Great Need for a Cardiomyopathy Registry

There are currently medical registries that track diabetes, congestive heart failure, depression and asthma among others. Beyond a pediatric registry, until very recently, there hasn’t been a broader registry that tracks genetic cardiomyopathies, although these conditions affect more people than ALS, Muscular Dystrophy, and Multiple Sclerosis combined.

Cardiomyopathy Association of Australia

Cardiomyopathy is a disease of the heart which can affect anyone at any time.

Cardiomyopathy UK

Our vision is for everyone affected by cardiomyopathy to lead long and fulfilling lives. We are a specialist charity providing information, advice and support to enable anyone affected by cardiomyopathy to live as full a life as possible. We raise awareness, improve diagnosis and management of the condition and we promote medical research.

Children's Cardiomyopathy Foundation

The Children's Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. CCF is dedicated to accelerating the search for cures while improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy.

Dilated Cardiomyopathy

Dilated cardiomyopathy (DCM) is a condition in which the heart's ability to pump blood is decreased because the heart's main pumping chamber, the left ventricle, is enlarged and weakened; this causes a decreased ejection fraction (the amount of blood pumped out with each heart beat). In some cases, it prevents the heart from relaxing and filling with blood as it should. Over time, it can affect the other heart chambers as well.

Dilated Cardiomyopathy Research Project

We aim to advance our understanding of the genetics of dilated cardiomyopathy (DCM) by combining clinical and genetic information from a large number of families.

Huge Heart

Huge Heart is an organization dedicated to Cardiomyopathy- a weakening of the heart muscle. As of late Cardiomyopathy has been a common disease/condition amongst many athletes and young adults. It is a serious disease which can lead to complications such as sudden cardiac arrest. Our Mission is to provide a website to support people living with cardiomyopathy and to inform people about the impact that Cardiomyopathy has on health, lifestyle and longevity.

Hypertrophic Cardiomyopathy

We hear it far too often: A young athlete collapses and dies, their youth and athleticism proving to be a cruel camouflage for a time bomb ticking within their seemingly-invincible body - Nancy Brown

MyoKardia

We have used our precision medicine platform to generate an initial pipeline of therapeutic programs for the chronic treatment of the two most common forms of heritable cardiomyopathy—hypertrophic cardiomyopathy, or HCM, and dilated cardiomyopathy, or DCM.

Pediatric Cardiomyopathy

Most cases of pediatric cardiomyopathy occur for unknown reasons (idiopathic). Pediatric cardiomyopathy may be inherited or acquired. In recent years, investigators have determined that the cause of pediatric cardiomyopathy in many children may be disruption or changes (mutations) of certain genes. Researchers have discovered more than 300 different genetic mutations that may play a role in the development of different forms of cardiomyopathy.

Scottish H.A.R.T.

We are a Recognised Scottish Charity involved in research into Cardiomyopathy and all heart diseases and we are currently raising funds to put a professionally manned screening unit on the road to test all young athletes and families at risk.

Share Registry

The goal of the Sarcomeric Human Cardiomyopathy Registry (SHaRe), a first-of- its-kind effort, is to advance the understanding of hypertrophic cardiomyopathy (HCM) and dilated cardiomyopathy (DCM), two types of heritable heart disease affecting nearly 2.4 million adults and children in the U.S. and Europe.

Cardiology Definitions

Cardiomyopathy represents a group of diseases of the heart, which involve the heart muscle itself resulting in contractile and relaxation dysfunction of both ventricles leading to progressive chamber dilatation and then hypocontractile walls.

Cove Point Foundation

The cause of Dilated Cardiomyopathy (also known as Congestive Cardiomyopathy) is not known, though it sometimes results from a viral infection, cancer chemotherapy and is sometimes inherited. It may be associated with the genetic disorder known as Barth Syndrome.

Mayo Clinic

Cardiomyopathy is a disease of the heart muscle. The name comes from the roots "cardio" meaning heart, "myo" meaning muscle and "pathy" meaning disease. The known causes of cardiomyopathy are many, and include coronary artery disease and valvular heart disease.

MedlinePlus

Cardiomyopathy is a weakening of the heart muscle or a change in heart muscle structure. It is often associated with inadequate heart pumping or other heart function abnormalities.

National Heart Lung and Blood Institute

Cardiomyopathy refers to diseases of the heart muscle. These diseases have a variety of causes, symptoms, and treatments. In cardiomyopathy, the heart muscle becomes enlarged or abnormally thick or rigid. In rare cases, the muscle tissue in the heart is replaced with scar tissue.

Nature,com

Cardiomyopathies are diseases of the heart muscle. This group of pathological conditions includes dilated cardiomyopathy, hypertrophic cardiomyopathy, restrictive cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy, and left ventricular noncompaction cardiomyopathy. They can be hereditary or acquired conditions.

Texas Heart Institute

About 500,000 Americans have cardiomyopathy, and many do not even know they have the condition. Cardiomyopathy is a leading cause of heart failure and the most common reason for needing a heart transplant.